CancerQuest | Interview with Jan Niles

Jan Niles was diagnosed with melanoma as a young woman. In this interview she talks about her experience, how she obtained the support she needed. Jan talks about how she found out about, and enrolled in, a clinical trial. Jan also talks about risks and prevention of skin cancer and the importance of sun safety for people of all ages and nationalities.

Questions and Answers (Videos in English)

	About Jan Niles(Time: 9 sec)
	How did you first become aware of your cancer?(Time: 42 sec)
	At what point did you decide to go see a doctor?(Time: 49 sec)
	What information did you seek and how/where (journals, magazines, Internet)?(Time: 1 min 12 sec)
	Did you decide to bring anyone along with you to see the physician?(Time: 39 sec)
	What was your reaction when you heard the diagnosis?(Time: 46 sec)
	What were your friends' reactions to the diagnosis?(Time: 1 min 01 sec)
	What information was NOT available that you wanted then or know NOW (in retrospect) would have been useful?(Time: 1 min 42 sec)
	What was your family's reaction to the diagnosis?(Time: 44 sec)
	How do your religious or spiritual practices help you cope with your condition?(Time: 43 sec)
	What is the most beneficial type of support that you receive from your family/friends/co-workers?(Time: 1 min 43 sec)
	How do you deal with the stress of a melanoma diagnosis?(Time: 2 min 19 sec)
	Did you obtain medical support for your anxiety/depression?(Time: 51 sec)
	How could the medical profession better handle the mental health issues faced by cancer patients?(Time: 2 min 30 sec)
	How do you handle the physical side-effects of cancer treatment?(Time: 2 min 17 sec)
	Have you participated in any clinical trials?(Time: 2 min 21 sec)
	Where did you find out about the trials?(Time: 1 min 13 sec)
	How could the information on the trials be improved for patients?(Time: 1 min 46 sec)
	Was the consent form straightforward and easy to understand?(Time: 58 sec)
	Do you think people are afraid of clinical trials and associated risks?(Time: 58 sec)
	What do you think should be done at the government/local level to increase cancer prevention/awareness?(Time: 1 min 23 sec)
	At the time of your diagnosis, were you aware of the risk factors for melanoma?(Time: 21 sec)
	What are some of the possible causes of skin cancer?(Time: 3 min 54 sec)
	What precautions could people take to prevent skin cancer?(Time: 3 min 0 sec)
	What would you like to say to teenagers about the risks of sun bathing and the use of tanning beds?(Time: 2 min 34 sec)
	Did you try or think about using any alternative medicine?(Time: 1 min 17 sec)
	How well did your physicians manage your pain?(Time: 55 sec)